When I was born, I was a healthy baby at normal size. Everything seemed okay.
At my well-baby checkup, my mom was informed that I had a massive hole in the left side of my heart. I was immediately transported to Egleston Hospital, now Atlanta Children’s medical center, to be worked on.
At four weeks old, I received the Glenn surgery. A shunt was put in to replace my left atrium. This held up until about the age of two; soon after, I was given the Fontan procedure and the blood was rerouted through my heart to produce better results. I spent the months after both surgeries in the hospital and had to visit doctors regularly.
There is a huge scar running down the middle of my chest, but luckily, I haven’t experienced any other symptoms until recently. Shortness of breath, lack of motivation, and chest pains plague me constantly. I likely will need a pacemaker put in over the summer. It’s alright though… some people can’t walk, some can’t even think, so I think I came out pretty lucky.